CREON Patient Videos

Exocrine pancreatic insufficiency (EPI) and cystic fibrosis (CF)

Sabrina, Jennifer, and Bryan share tips for living with EPI due to CF.

View transcript

Sabrina, Jennifer, and Bryan:

I was only five months old when my mom took me to the doctor and I was diagnosed with cystic fibrosis. This also led to the diagnosis of exocrine pancreatic insufficiency, also known as EPI due to CF.

Her pediatrician explained that in a person with cystic fibrosis the body makes a sticky mucus that affects the lungs and also the pancreas.

In the pancreas, this mucus stops the digestive enzymes from coming out.

These enzymes are necessary to help properly digest food.

Pancreatic enzyme replacement therapy, also known as PERT, replaces the enzymes that the pancreas normally produces.

Being someone with CF and having EPI that’s caused by CF means as you grow up, you have to take responsibility for your treatments. For me, learning that responsibility extended to other areas of my life. Other kids were focused on their video games and I was focused on remembering to take my enzymes.

Well I would say, don’t be scared to talk to people about it, and you should always tell your doctors, ask questions, you know, and just, just start to live with it.

I used to be more self-conscious in high school and college. I didn’t want to take my enzymes in public. I’d choose to be discreet about taking them, or I’d take them in the bathroom. Now I know that taking pancreatic enzymes in front of people will spark questions. But that’s okay, because it gives me a chance to explain it. I didn’t choose to have this condition, but it gives me a chance to educate help others.

Uses

CREON is a prescription medicine used to treat people who cannot digest food normally because their pancreas does not make enough enzymes due to cystic fibrosis, chronic pancreatitis (which is the swelling of the pancreas that lasts a long time), pancreatectomy (which is the removal of some or all of the pancreas), or other conditions.

Important Safety Information

  • CREON may increase your chance of having a rare bowel disorder called fibrosing colonopathy. The risk of having this condition may be reduced by following the dosing instructions that your doctor gave you.
  • Do not crush or chew CREON capsules or its contents, and do not hold the capsule or capsule contents in your mouth. Crushing, chewing, or holding the CREON capsules in your mouth may cause irritation in your mouth. Talk to your doctor or consult the CREON Medication Guide for how to take CREON if you have trouble swallowing capsules. Always take CREON with a meal or snack and enough liquid to swallow CREON completely. Take CREON exactly as your doctor tells you.
  • Tell your doctor right away if you have unusual or severe: stomach or abdominal pain, bloating, trouble passing stool, nausea, vomiting, diarrhea, worsening of painful, swollen joints (gout), or allergic reactions including trouble with breathing, skin rashes, or swollen lips.
  • The most common side effects include: increased or decreased blood sugars, pain in your stomach area, frequent or abnormal bowel movements, gas, vomiting, dizziness, or sore throat and cough.
  • CREON and other pancreatic enzyme products are made from the pancreas of pigs, the same pigs people eat as pork. These pigs may carry viruses. Although it has never been reported, it may be possible for a person to get a viral infection from taking pancreatic enzyme products that come from pigs.

Refer to the CREON Medication Guide and full Prescribing Information every time you refill your prescription because information may change. Tell your healthcare provider if you have any symptom or side effect that bothers you or does not go away.

You are encouraged to report negative adverse effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call 1-800-FDA-1088.

If you cannot afford your medication, contact www.pparx.org.

Please see the full Prescribing Information, including Medication Guide, provided on this website and discuss it with your doctor.

Video Transcript

Sabrina, Jennifer, and Bryan:

I was only five months old when my mom took me to the doctor and I was diagnosed with cystic fibrosis. This also led to the diagnosis of exocrine pancreatic insufficiency, also known as EPI due to CF.

Her pediatrician explained that in a person with cystic fibrosis the body makes a sticky mucus that affects the lungs and also the pancreas.

In the pancreas, this mucus stops the digestive enzymes from coming out.

These enzymes are necessary to help properly digest food.

Pancreatic enzyme replacement therapy, also known as PERT, replaces the enzymes that the pancreas normally produces.

Being someone with CF and having EPI that’s caused by CF means as you grow up, you have to take responsibility for your treatments. For me, learning that responsibility extended to other areas of my life. Other kids were focused on their video games and I was focused on remembering to take my enzymes.

Well I would say, don’t be scared to talk to people about it, and you should always tell your doctors, ask questions, you know, and just, just start to live with it.

I used to be more self-conscious in high school and college. I didn’t want to take my enzymes in public. I’d choose to be discreet about taking them, or I’d take them in the bathroom. Now I know that taking pancreatic enzymes in front of people will spark questions. But that’s okay, because it gives me a chance to explain it. I didn’t choose to have this condition, but it gives me a chance to educate help others.

Uses

CREON is a prescription medicine used to treat people who cannot digest food normally because their pancreas does not make enough enzymes due to cystic fibrosis, chronic pancreatitis (which is the swelling of the pancreas that lasts a long time), pancreatectomy (which is the removal of some or all of the pancreas), or other conditions.

Important Safety Information

  • CREON may increase your chance of having a rare bowel disorder called fibrosing colonopathy. The risk of having this condition may be reduced by following the dosing instructions that your doctor gave you.
  • Do not crush or chew CREON capsules or its contents, and do not hold the capsule or capsule contents in your mouth. Crushing, chewing, or holding the CREON capsules in your mouth may cause irritation in your mouth. Talk to your doctor or consult the CREON Medication Guide for how to take CREON if you have trouble swallowing capsules. Always take CREON with a meal or snack and enough liquid to swallow CREON completely. Take CREON exactly as your doctor tells you.
  • Tell your doctor right away if you have unusual or severe: stomach or abdominal pain, bloating, trouble passing stool, nausea, vomiting, diarrhea, worsening of painful, swollen joints (gout), or allergic reactions including trouble with breathing, skin rashes, or swollen lips.
  • The most common side effects include: increased or decreased blood sugars, pain in your stomach area, frequent or abnormal bowel movements, gas, vomiting, dizziness, or sore throat and cough.
  • CREON and other pancreatic enzyme products are made from the pancreas of pigs, the same pigs people eat as pork. These pigs may carry viruses. Although it has never been reported, it may be possible for a person to get a viral infection from taking pancreatic enzyme products that come from pigs.

Refer to the CREON Medication Guide and full Prescribing Information every time you refill your prescription because information may change. Tell your healthcare provider if you have any symptom or side effect that bothers you or does not go away.

You are encouraged to report negative adverse effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call 1-800-FDA-1088.

If you cannot afford your medication, contact www.pparx.org.

Please see the full Prescribing Information, including Medication Guide, provided on this website and discuss it with your doctor.

Uses and Important Safety Information

Uses1

CREON is a prescription medicine used to treat people who cannot digest food normally because their pancreas does not make enough enzymes due to cystic fibrosis, swelling of the pancreas that lasts a long time (chronic pancreatitis), removal of some or all of the pancreas (pancreatectomy), or other conditions.

Important Safety Information

  • CREON may increase your chance of having a rare bowel disorder called fibrosing colonopathy. The risk of having this condition may be reduced by following the dosing instructions that your doctor gave you.
  • Do not crush or chew CREON capsules or its contents, and do not hold the capsule or capsule contents in your mouth. Crushing, chewing, or holding the CREON capsules in your mouth may cause irritation in your mouth. Talk to your doctor or consult the CREON Medication Guide for how to take CREON if you have trouble swallowing capsules. Always take CREON with a meal or snack and enough liquid to swallow CREON completely. Take CREON exactly as your doctor tells you.
  • Tell your doctor right away if you have unusual or severe: stomach (abdominal) pain, bloating, trouble passing stool, nausea, vomiting, diarrhea, worsening of painful, swollen joints (gout), or allergic reactions including trouble with breathing, skin rashes, or swollen lips.
  • The most common side effects include: increased (hyperglycemia) or decreased (hypoglycemia) blood sugars, pain in your stomach area (abdominal area), frequent or abnormal bowel movements, gas, vomiting, dizziness, or sore throat and cough.
  • CREON and other pancreatic enzyme products are made from the pancreas of pigs, the same pigs people eat as pork. These pigs may carry viruses. Although it has never been reported, it may be possible for a person to get a viral infection from taking pancreatic enzyme products that come from pigs.

Refer to the CREON Medication Guide and Full Prescribing Information every time you refill your prescription because information may change. Tell your healthcare provider if you have any symptom or side effect that bothers you or that does not go away.

You are encouraged to report negative adverse effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call 1-800-FDA-1088.

If you cannot afford your medication, contact www.pparx.org.

Reference: 1. CREON [package insert]. North Chicago, IL: AbbVie Inc.

  1. Reference:
  2. CREON [package insert]. North Chicago, IL: AbbVie Inc.

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